I was reviewing the IVF packet they gave me and found that they'd included the "Research Subject Information and Consent Form." This is the consent form for the "research study" that I was "invited to take part in" that would allow them to use our "discarded, non-viable sperm, eggs and embryos to further [their] research towards understanding and advancing reproductive science." A worthy cause, indeed. But I refused to sign because of the following sentence:
"Should we ever provide your cell lines to anyone else for research or commercial use, it [sic] will do so in such a way as to try to protect your privacy and confidentiality as stated in the confidentiality section of this consent form."
Yeah, you read it right, they're gonna "try" to protect my privacy. Uh-huh. Sure. And commercial use? What, exactly, does that mean? (If Mon.san.to's going to start splicing my genes into soybeans so that they're no longer able to reproduce, thus protecting their intellectual property, well, maybe that could work, but I would be totally against it.)
Sheesh, are they able to get anyone to sign this?
Or am I overreacting?
Is There Anybody Out There?
5 months ago
Wow! I would never sign that! I wonder how many people do without reading that? Frightening!
ReplyDeleteNo..I wouldn't sign that either!!!
ReplyDeleteWe were given the option of signing something similar, but I can't remember any clause having to do with either "commercial use" or protection of privacy. That's awfully strange. Somehow, especially the "commercial" part...
ReplyDeleteNFW!
ReplyDeleteSeriously, what the heck???
Ummm, HUGE no! That is beyond weird!!
ReplyDeleteHi, I have just started following your journey, and I wish you all the best. I too spend many years poring over my Fertility Friend charts.
ReplyDeleteNo, I wouldn't sign that either. I hope that your meds aren't making you crazy, and that your ovaries are behaving themselves.